Fall is notorious (said in my head like no-no-no-notorious...as in the B.I.G) for fundraisers. I've participated in a few walks and 5Ks for various causes, because well...that is the right thing to do. You do what you can to help people who need help. This year is no different. I'm participating with my company in the Komen walk next weekend. No big deal.
Well as of a few days ago, I've learned there is a new walk in town that is a very B.I.G deal - see Biggie Smalls reference above - to me and my family. NephCure is a foundation that supports research to find better treatments, the cause, and hopefully one day a cure for FSGS and Nephrotic Syndrome. That's the story of my life this year...FSGS and Nephrotic Syndrome. I used to be a lover...now I'd definitely define myself as a fighter because of my run-in with this devastating disease. Actually I technically am a fighter considering I started Brazilian Jiu Jitsu this morning, but we'll save that for another post.
Now if you've read any previous posts, you'll likely agree I've been incredibly blessed in my battle with this disease. As of this beautiful 20th day of October, I'm completely in remission. My protein loss is 34mg per day. My kidney function is 100%. My labs are completely normal. You'd never suspect my immune system attacked my kidneys which in turn retaliated and tried to take my life!
I've learned during my brief experience with this disease that I'm one of the fortunate few that received the education and got the treatment from the specialists who could help to get me where I am 10 months later. There are so many people that go undiagnosed or who don't have the opportunities that I had. The worst part...this stuff usually attacks children.
Ok, I'll stop with the sappy tugging of the heart strings. All I'm asking is that you'll consider taking the time to look at my team page for the NephCure Foundation's Oklahoma Ghost Walk 2012 and donate. To keep it simple (remember K.I.S.S. in school?) I made the team name The Bad Bad Beans. We were unable to put together a physical walk this year but did not want to give up on 2012. A ghost walk is a virtual walk where you can go online and make contributions to support something very near and dear to my heart...well ok to my kidneys but you get the point. The link below can take you to the NephCure page where you can find information about the event in OKC as well as the foundation itself. The "walk" is open until the end of November. Anything you could contribute would be greatly appreciated.
NephCure Foundation's Oklahoma Ghost Walk 2012
I'm part of a committee that is working on 2013 and 2014 benefits for NephCure. Stay tuned for an actual walk or maybe even a golf tournament!
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